A Personal Cause | FAS |
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Much of what I post is light-hearted, or posted with the intent of at least slightly entertaining the reader. However, there is a very serious issue that I take to heart, and that is the terrible waste of money and resources by our various government agencies and other groups that are supposed to be helping our handicapped and disabled citizens. In February 2006, Mike, age 27, died from complications from surgery in an attempt to correct problems with his failing heart. Perhaps the saddest part of Mike’s short life was the fact he was denied so many benefits he deserved because the paperwork was too complicated for him to comprehend, or the case workers didn’t follow through, or were simply incompetent. Had Mike been able to access better medical care he might still be with us. In 1997, I re-married, and knowingly took on two challenged step-children. Aubrey and Aaron, adopted at age 5 and 3, started their lives with brain damage due to their birth-mom being a drug addict and alcoholic. These children were further damaged by abuse and neglect until their adoption.I have been amazed and appalled at the total lack of resources available for these children. Oh, it exits on paper. Health and Welfare has really great programs, but none of them can be made to be effective in real life. I can go on and on about the challenges in getting help for these kids. Aubrey and Aaron are now 25 and 22, struggling to survive in a world that without a few people fighting for them would simply lock them up in prison or a mental ward. As time goes on I will be linking to more and more information about what needs to be done, and where our systems are lacking. Anyone with input is urged to contact me. I am looking both for unsolved problems where those of us that have been though this can be of help, and help from those of you that have found solutions.There are many kinds of disabilities. The one I am most familiar with because of having lived with it, is Fetal Alcohol Syndrome or FAS. Here are some links that will further explain this disability.I have also started a discussion forum on this subject. Please visit my "Forum" page, go to "Non-Technical" and feel free to join the dialogue. http://www.come-over.to/FAS/ http://www.come-over.to/FAS/Aaron.htm |